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Jun 16, 2011

10 Days for 10 Years ... Day 3

Day 3
It’s funny, you’d think that once you've heard the word cancer the impact of the word would lessen each time you had to say … it.  After a marathon of tests, where I had to give my diagnosis of cancer over and over and over again –something I’d YET to do that day without welling up with tears— at a myriad of hospitals, I found myself in the waiting room of yet another doctor.  The only difference was this doctor was the specialist my primary care physician had arranged. He was supposed to be the one who could save my life …
As Mark and I waited in his lobby my mom joined us with a box of candy. 
I love her. 
She’s Italian and if there’s trouble then there’s food. 
The bigger the trouble the sweeter the food. 
A whole box of candy meant …
I was in some big trouble.   
She’d probably been on web MD like I had and figured out if I came through this it would be not a small miracle but a big water to wine, Lazarus from the dead miracle.
The nurse took us back to the doctor’s office where he proceeded to look down at us from behind his high and mighty desk.  He rambled on and on about the nature of my cancer, what famous people have had my cancer (yes, I have shared a disease with a Kennedy) and then he ended his pontification with, “Of course, I need to examine you now.”   
My momma and my husband sat in the doctor’s office with all of his accolades of what a marvelous doctor he was leering at them  and I was ushered down the hall to my first exam room with the first of many nasty exam robes to change into. 

I have since decided you can tell the quality of the doctor by the quality of his exam robes.  Some have the fabric ones that need to be washed after every use. They are usually worn, but soft … comforting. Then there are the doctors who have the exam robes that feel like fabric but ya can toss them after they’re used.  You know like the paper napkins that fool ya into thinking their linen napkins.  Finally, there are the doctors that have the scratchy, one-time-use robes that make you think you’re slipping on the bark of a tree instead of a discreet robe. 
This doctor had the bark robes. 

When he walked in there were no pleasantries.  
“Lay back.” 
I complied.
Now remember where I said my bump was?  Where my leg and my butt met.  Not the most comfortable place to have a doctor probing… I was already nervous from the diagnosis and petrified by the thoughts of chemo and this doctor wasn’t making me feel any more comfortable. 
Once he finished with my leg he said, “I’m going to check to see if there are any metastasis sites.”
“That’s bad, right?” Did I mention I'm a bit sarcastic when nervous ... okay, just over all sarcastic.
No answer just a grunt and shake as he checked my  groin, my arm pits and then my breasts.  He stopped over my right breast.  Sat me up straight. Eyes wide he then ripped my gown open. 
 I’m pretty sure I gasped and tried to pull it back together, I can’t remember.  I was still in shock that he had shredded my bark gown.  Not that I was fond of the bark, but it was covering, me! 
“You have a lump in your breast.”
“Um, yeah… I’ve had fibroids in that breast. It’s probably the same…”
“No.  It’s a metastasis site.  Get dressed and meet back in the office. “  He then walked out of the door leaving it wide open and me sitting on the table with a ripped robe and my maybe metastasized boobies hanging in the wind for the receptionist to take a gander. 

When I got back to his office, my mom was grilling the doctor like nobody’s business.  My husband, an EMT and Physician’s Assistant student, was holding my mom’s hand and also trying to ask the doctor a question. 
“Let’s understand our roles here.”  The doctor said.  “You,” He looked at my mom “are the mother. You act like the mother.”   He then looked at my husband.  “You are the husband and I am the doctor.”   He sat down and looked at me.  “I’m the one who’s going to heal her.” 
No kidding those were his words… “I’m the one who’s going to heal her.”  He then went on to tell me that I would have a port-a-catheter implanted in my chest. It would tie into my heart because the chemo, if we insisted, would be too strong and burn my veins.  He needed a direct line to my heart.  He had consulted with a specialist on the matter. 
When we finally were excused from his office, I knew there was a possibility I would lose my leg like one of the Kennedy boys had ... what I didn’t know was that the good and all mighty doctor had told my husband and mother that I had six months to live. 
Yeah... I'll let that one sink in on ya for a second or two. 
He was certain that the cancer had metastasized and that chemo was futile.  He also recommended to my family that my breast be removed at the same time the catheter was installed and, if they wanted me to live, so should my leg. 
I was scheduled for my surgery in two weeks …

Jun 15, 2011

10 Days for 10 years ... Day 2

Day 2
A day before I was supposed to have my stitches removed I received a phone call from a random doctor's office wanting to schedule a surgery.  I didn't think anything of it, but Mark insisted I call my primary care physician.  My primary physician's receptionist asked if I could come in that afternoon and was my husband with me.  On the way to the doctor’s office I knew I had cancer. That gut instinct that makes you feel nauseous and jumpy like all you want to do is break into a Forest Gump Run ... that gut instinct was kicking me square in the face.  There were three things that happened that confirmed my face kicking gut instinct of cancer:

  1. When Mark and I got to the doctor’s office we didn’t wait.  We were immediately ushered into an exam room.
  2. The doctor walked in two minutes after we sat down in the exam room.  Just long enough for me to look over at Mark and say, “You know it’s cancer, right?”  He turned green and sunk into his chair.
  3. The doctor wouldn’t look me in the eye when he walked in the room.  His head was hung low like a minister about to give a eulogy or a surgeon about to tell a family he did all he could … or a doctor about to tell a patient she had cancer.

I took the news away from the doctor and said, “It’s cancer, right?”
He just shook his head.
“What do we do?  I mean, what are my odds? It’s chemo and … I don’t know, what’s the next step.”
The doctor still couldn’t look me in the eyes. And when he did speak all he could say was, “Mindy, this is a really rare form of cancer. I’ve never really even heard of it, till you.  I have a specialist set up for you tomorrow. You have to go today to get … blah, blah, blah,”
I tuned out right about there. 
I had cancer...
August 19th, 2000
Well Lord, you really have a way of giving my world a wakeup call.
 I’ve been diagnosed with Extra-Skeletal-OsteoSarcoma … Cancer… at the age of 28. 
Seems surreal to me, but I know you’re going to be by my side … caring for me when needed and cheering me on as I fight.
I'm so very scared.
Please don’t let me become a shell of a woman…
 let me become a beacon to others …
 help me bring people to know You through my cancer battle.
Watch over my husband.
 Keep him strong. 
And let him know I don’t blame him if he decides to leave.

That night, sometime well after midnight, Mark found me crying on the bathroom floor.  He picked me up and set me in his lap.  I didn’t know how long he’d be there, but for that night—that moment—  we were husband and wife getting ready to do battle.

Every time I hear this song it makes me think of that moment...

Jun 14, 2011

10 Days for 10 years ... Day 1

June is kind of a special month for me.
I wasn’t born in June.
I didn’t get married in June.
None of my babies were born in June.
But…
It’s still a special month for me.
Over the next 10 days I’m going to take a little departure from my usual quirky, sarcastic, often cringe worthy posts and invite you all on a little adventure with me. 
I call it: 10 DAYS FOR 10 YEARS.
I know you have no clue what the heck the past 10 years could mean for me. 
It’s been an interesting journey.
Quite a blessing, really. 
I’m a writer. I journal and I save those journals. I’ve written in a journal/diary/memory keeper/ since I was in the 6th grade.  You would be amazed by some of the adventures those pages contain.  Through my memory keeping, I discovered a great sense of faith.  I always believed that my faith would see me through dark times.  I just never really imagined they could be so dark.
I’m a Christian and I believe in God and the journey I hope you’ll take with me over the next 10 days really taps into my faith.
I hope you have the courage to join me…
   DAY 1:
I had a bit of a fairytale wedding.
The oldest and only girl in an Italian family…  
I wore my momma’s wedding dress.
My daddy walked me down the aisle.
All four of my brothers participated.
A wedding party of 14.
A guest list of 400.
I’m sure you can fill in the blanks of awesomeness that my wedding entailed!
You know what? Lemme just show you ....

Little did I know a year later I’d be contemplating divorce and death.
August 14th, 2000
…The only place I find happiness is in romance novels and fictitious men who fight for their women.
And provide for them once they’ve been swept off their feet…
I feel trapped and afraid that this is how life will be.  I feel like a failure contemplating therapy and even worse… divorce.  I’m tired of trying and so close to just giving up.
Lord, what do you want me to do? 
I felt the pea sized lump right where my leg meets my rear end in June or July of 1999.  By August of 2000 the lump had grown from a pea to a golf ball. A day after I wrote the above entry Mark called me at work and said he couldn’t live this way.  I either made an appointment to have the lump removed and biopsied or he wouldn’t be home that night.
I really did contemplate just letting him leave, but my mom said, “Mindy, that’s your husband and he deserves better than that.”  I called and made an appointment for the removal.  The next morning, August 15th, I went to the doctor’s office with my mom and had the bump removed.

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